That’s the question I asked myself when I saw this e-mail pop up asking for me to raise awareness for the ALS Therapy Development Institute. The who? The what? I had seen the ice bucket challenge but I wasn’t able to relate throwing a bucket of ice over your head for a seemingly unbeknownst disease called ALS – also known as amyotrophic lateral sclerosis. So what exactly is ALS? You may be more familiar with the term “Lou Gehrig’s disease” and it affects certain cells in the brain and spinal cord needed to keep our muscles moving. There is NO cure.
ALS is also a deadly disease – Most people with ALS live 2-5 years after their first signs of disease. Those numbers are SCARY. Imagine living the last days of your life with someone having to do EVERYTHING for you. Brush your teeth, hair, prepare a slice of toast and add butter.
Early signs and symptoms of ALS include:
- muscle cramps and muscle twitching
- weakness in hands, legs, feet or ankles
- difficulty speaking or swallowing
But there is help. Sadly this help comes at a cost and there is only ONE medication currently being used to treat ALS. This one medication only extends your life by 2-3 months – BUT YOU CAN HELP! Be sure to check out AT-1501, right now, it is the most effective treatment tested at the ALS Therapy Development Institute! It’s on it’s way to clinical trial but we need your help.
This urgent unmet medical need for effective treatments for this devastating and fatal disease is the basis for the research and drug development effort at the nonprofit biotech organization, ALS Therapy Development Institute.
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With your donation and your help WE can make a difference! Please don’t forget to share on your own social channels as well!